...............drum roll please.............
Vincent Alexander Serna
This actually wasn't a name we were even considering but we came across it last night and decided it was just right for him. Robert remembered a movie that he really liked called Gattaca. I won't go into all the details of the movie but it was based in a "not-too-distant future" where babies are genetically modified to basically be "perfect". Anyway, Vincent, the main character, was born the natural way and suffered from a heart defect. Because of this, he was discriminated against and considered "genetically inferior". He takes on the identity of someone who has been genetically modified in order to achieve his goals and an imperfect Vincent transcends his deficiencies through force of will and spirit. We also found out that it means "conquering" which we we also thought fit. :)
We stayed with Vincent most of the day in the ICN but nothing much has changed. He's been keeping steady on the ECMO. We met with one of the doctors to go over the plan for the next few days. Basically, she said that they were concerned about the blood clotting in the ECMO machine. She said if that happened then they would have to change out the machine which is never good. That usually means a step back in a baby's healing process. If they are able to get through the weekend without having to do this, then they are going to do a trial off of ECMO on Monday morning. He will still have support of ECMO if needed but they are going to try him with just the ventilator to see how he responds. So, that will be the big test...please continue to pray for him...that he stays strong and keeps fighting.
We also took a few pictures today and wanted to share...
Here's a couple pictures of Vincent with his daddy :)
I just thought I'd share the view from our room in the hospital...it's rare to have this nice of a day in SF.
Hey guys,
ReplyDeleteSorry to hear that you have to do the EMCO rollercoaster too. Don't worry though! As intimidating as that machine can be, know that it is saving his life. :) Our little guys are strong fighters and we will be praying for you all in the next few days/weeks/months/whatevers as you go through this journey. Know that God is bigger than all of this, and it is SO important that you really rely and trust in HIM for strength. You will just burn out if you don't. Prayers being sent your way from Gainesville Florida.
Jordan, Claire, and Max Griffin
He is adorable and love the name, very French :0).
ReplyDeleteWe're keeping fingers crossed that the ECMO doesn't have to be changed and that Vincent does well during the trial. Stay strong little one!
Hugs from the UK
We love the story of how you chose Vincent's name - it is so right!! We are thinking of you and praying always. Absolutely LOVE the pictures!!!! Hugs!!
ReplyDeleteI've never seen the movie, but now I want to. What an awesome way to chose your son's name, and quite fitting too! Our CDH babies are warriors as was this movie character. YOUR warrior will will be off ECMO and conquering CDH before ya know it!
ReplyDeletePrayers.
Vincent, what a great name! Vincent is in our thoughts as he rests on ECMO. I hope it does just the trick to get his lungs stronger and where they need to be.
ReplyDeleteSincerely,
Sarah
I love the name Vincent. I remember that movie very good movie.
ReplyDeleteVincent is beautiful! I am praying for your little warrior. The view is great! We remember that view, it feels like we were there yesterday.
Hey there! I just wanted to also add, don't be stressed by Vincent's appearance! I was so intimidated by Max being very very swollen on ECMO, but once he was off, and the swelling went down, I got to see this gorgeous baby underneath! NOT that they aren't beautiful and amazing already, but sometimes appearances (big tubes, machines, etc) add to the stress...don't let it! He is strong, tough, and going to be AMAZING. Maybe this is just girl stuff.
ReplyDeleteClaire