Yesterday we had some good news. They took an x-ray in the morning and the doctor said there was some improvement. They were able to see that the lungs have opened up a little bit more. They're going to continue to give him Albuterol hourly to help them open more before the trial off on Monday.
The rest of the day was pretty uneventful. There were no other changes. His saturation and heart rate have been steady. They have to keep him sedated because they don't want him taking spontaneous breaths but I do love to see him move his little hand or foot. :)
I checked in this morning to see how it went overnight and the nurse said that there were some clots in the machine but they didn't need to change anything out just yet. They may need to change out a part or the entire circuit today but she said for now it's fine. They'll keep an eye on it and be prepared if they need to do anything.
They're going take another x-ray later this morning and I'm hoping that will bring more good news.
I get my staples taken out today and discharged. They think they may be able to board us tonight which would be great! I guess if they have room they will occasionally do that for parents. Otherwise, we may just try and stay in the waiting room overnight to be close to Vincent. We have our name on the waiting list for the Family house and the Ronald McDonald house but we have yet to hear from them.
I'm hoping for no news today...well maybe some good news from the x-ray but other than that, no other changes.
Thanks again to everyone for all your support and prayers!! We have a lot of people praying for little Vincent and we REALLY want to thank you. I know a lot of you who follow this blog have been through this and know what we're going through and we really appreciate the support. :)
Surgeon Appointment
1 year ago
Glad he is stable and praying they won't have to change anything until his trial tomorrow! He is a beautiful baby and I love his name, especially the meaning! We are continuing to pray for you all daily!
ReplyDeleteSo glad to hear that Vincent is stable and his lung has improved a bit. Keeping all fingers crossed that they won't need to change the ECMO and that you guys get a room close by. Many prayers being said for little Vincent. Fight little guy, fight!
ReplyDeleteHugs from the UK.
Hey there! Vincent is tough! :) Keep touching him (even just his head-I know sometimes we had to be hands off) and talking in his ear, he can hear you! Nothing like Mama and Daddy's voice to heal a baby.
ReplyDeleteYou guys are doing great.
Claire
Vincent is a perfect name!! Praying for Vincent that he stays strong and his lungs and heart are resting. Hoping for a good trial off tomorrow and the ECMO circuit will not need to be changed. Sending you lots of positive thoughts and energy for a good and strong week.
ReplyDeleteFight Vincent fight!!
Tracy Meats, Ian's mom
Praying that Vincent continues to get stronger each day and his lungs open up. Praying that tommorow goes well.
ReplyDeleteBTW, let us know if you need a place to stay. Our foundation would be happy to help you stay at a near by hotel at no cost to you.
ReplyDeleteHang in there you guys. Craig & I slept in the waiting room about 3 nights. Not the most accomadating, but very close to the NICU ;O) Praying hard that they get Vincent off ECMO before the clots cause a problem with the circuit It is so frustrating to have issues with the very machine that is needed to keep them going while their little lungs heal. Praying that little Vincent continues to improve and beats this awful CDH!!!
ReplyDeleteI am sending positive thoughts that ECMO gives Vincent the rest he deserves! Vincent is beautiful! My prayers go out to all of you!
ReplyDeleteHUGS
Joanna(gabriela-monteiro.com)
Great name! And so glad to hear that he is stable. We are keeping our fingers, toes, and paws crossed that everything goes well for his off-ECMO trial.
ReplyDeleteDiane, Nikki & the Furkids
Love his name!!! Please know that we are praying faithfully for Vincent and if there is anything we can do please do not hesitate to contact us.
ReplyDeleteThe Parker Reese Foundation
I am thinking about you. My daughter was delivered at UCSF in February 2009. The doctors and nurses are amazing. You are in very good hands.
ReplyDeleteChelsea, Were thinking of you guys. Alesha just read Rob's text great news.
ReplyDeleteLove you guys Frank