Wednesday, September 30, 2009

"He Keeps on Surprising Me"

We checked on Vincent last night after the surgery and the first thing the nurse said to us was "He keeps on surprising me". His stats seemed to look ok. His Sats were high, his CO2 was close to where it should be and his heart rate was down a little. His blood pressure was still fairly low and he has a lot of fluid in his body (which makes him look really puffy).

The nurse said this morning that they are going to start to wean him off of everything. First, the Flowlan because that's what's making his blood pressure so low. Then they're going to try and wean him off the ventilator (they had it on max settings for the surgery). They're also going to wean him off of some of the pain medications he is on. She said that will take some time because they can get withdrawals...just as an adult would if they were dependent on pain meds. She also said they are going to wean him off the Pavulon (paralytic). She said it will be a slow process. He will begin to move fingers and toes, then hands and feet and eventually he'll wake up and start to move his head. She's also hoping that when he starts moving his muscles, he'll start to get rid of some of the fluids in his body.

Robert and I want to thank you for all of your comments and support. I would love to respond to everyone individually but it's just been so crazy with everything going on. But we do read them everyday and they really do mean a lot to, thank you!! :)


  1. Surprised?! I'm not surprised . . . he's a fighter, that one! And with all the love and strength of his amazing parents, he will pull through this. We continue to pray for his strength and send you all the positive energy we can muster and then some!! Love you guys!

  2. I am tickled pink to hear that Vincent is doing so well. Sounds like he is moving in the right direction. Kicking some serious CDH booty!
    Yeah Vincent!


  3. Nikki, Diane, Maggie, Sophie, Nikko and GavinSeptember 30, 2009 at 12:03 PM

    Sending both of you and Vincent our prayers for a strong recovery. You are in our thoughts constantly. Vinnie the little warrior prince, get well soon!

  4. I am at work and had to come in to check on Vincent. I have been thinking of him all day. I am so happy to hear the good news.
    Don't be afraid to ask the nurses to give him something if he looks uncomfortable to you. We did a few times with Nayeli. She looked miserable and would cry, we couldn't hear her because of the ventilator but we know she was.
    You are in our prayers.

  5. How exciting!I remember how we used to stare at Alina's little finger moving. We are soo pleased to read that Vincent is doing well. Be ready for setbacks but it sounds like he will out and about before you know it:0). We are praying for your fantastic little boy and can't wait to see more pictures of your little warrior.

  6. You have enough to worry about, so don't even think of replying to everyone! Just keep us posted with blog updates when you can. I am so happy to hear that the surgery went well and little Vincent is doing better. We will continue to pray for you all, especially Vincent.

  7. Weaning is a great step! That Flolan is super expensive, too...the sooner he's off of that the better!
    Best wishes for uneventful "weans!"

    Way to go Vincent!

    Love and prayers,

  8. So happy to hear Vincent is giving you "good Surprises". I hope the weans continue to follow a positive path! Keep up the fight Vincent!!!

  9. Keep it up Vincent! Will pray for you every day until you get to go home.


  10. Praying for Vincent!! Hope he continues making baby steps in the right direction and all his "weans" go very well. Keep fighting Vincent and before you know it mom and dad, he will be looking into your eyes.

    Positive thoughts and energy coming your ways,
    Tracy, Ian's mom

  11. We would first like to say that we are praying for you. We will be going through this very soon and we will keep reading your updates. Goodluck with everything and we will keep praying.
    ~Angela & Jim Hayes

  12. Talked to your dad yesterday. He told me about your blog to get updates on Vincent. I know this is a difficult hectic time for you all and each day has challenges. Little Vincent is blessed with love, positive thoughts and prays from friends and family, he WILL get better and better each day. Sending you all my love
    Jan Quinn

  13. Hi Chelsea and Robert, my name is Shane Nelson and I am Nayeli Faith Nelson's father.

    I want you to know you and your CDH Warrior are in our thoughts and prayers. If there is anything we can do for you, or anything you need, please let us know. We live locally and can bring something out, etc. You can email me at